Calvin's Story - Children's Hospice

"I'm so desperate for Calvin to get his independence and try to be a normal boy as much as he can," reflects Maureen Muteesa from London, the mother of 8 year old Calvin who is living with a serious illness.

 

Calvin's Story demonstrates the enormous positive impact that children's hospice can have on the lives of children living with serious illnesses and their families.

 


Children's Hospice

 

"Calvin was born premature. He had complex medical needs and he had a life limiting illness, which is called pulmonary hypertension," explains Maureen.

 

"When I had Calvin I had nobody to help me," reflects Maureen.

 

"Calvin accessed our services in 2007", explains Shahina Haque, Family Support Service Manager at Richard House Children's Hospice.

 

"At first I didn't even know Richard House existed to help you with you child on top of what you're doing," recalls Maureen.

 

"We provide a holistic care service," continue Shahina. "So in terms of medical care Calvin has lots of consultants that we work alongside with... which then enables us to help Calvin and his mum when he comes in for respite. So he gets the medical aspect but he gets to feel like he's a child who's come for a holiday."

 

"He's my life and I just have to continue to be there for him," concludes Maureen.

 

Please consider supporting children's hospice in the UK.

 

Matteo’s Story coming soon

Care Beyond Cure – Ondine’s Syndrome

 

“One of the things I remember when we first met Matteo was the phrase ‘we are giving you a baby who is alive’ that phrase meant everything and nothing, it meant that Matteo could die at anytime. Children born with Ondines syndrome do not have the cerebral impulse to breath.” Antonella Zamboni, Matteo’s Adoped Mother.

Read more…

Together for Short Lives

Guest blog:  Lizzie Chambers.  Development Director, Together for Short Lives.

 

There are an estimated 49,000 children and young people in the UK living with a life-threatening or life-limiting condition that may require palliative care support. This number may seem small compared to the global need, but for each child and their family, the impact on their daily lives is huge.
Together for Short Lives is here to help make sure that every one of these children and young people and their families gets the best possible care whenever and wherever they need it.  Read more…

TRUE LOVE AGAINST THE ODDS

Guest Blog by Mike Hill (Filmmaker, Little Stars)

 

After visiting 10 countries to capture stories with dozens of families about children’s palliative care you might think that it would be impossible to surprise me.

 

Not so. In Greece, I found a story – more specifically, a love story – so remarkable that it touched my heart and affected me profoundly. Read more…

Children’s Palliative Care in Greece

Guest Blog by Danai Papadatou

 

I have been particularly impressed by the significant work being created through the project “Little Stars” which informs and promotes the value of pediatric palliative care for children with life limiting conditions and for their families. It would a unique opportunity for “Merimna” to be included in the “Little Stars” project, and be part of this international project.  Read more…