LITTLE STARS - TRAILER

Life is short, value every moment.

 

Little Stars is tells the surprisingly life-affirming stories of young people around the world living with life-limiting illnesses.  Against the odds, these children and young adults are making the most of every moment thanks to the support of their loved ones, working in harmony with passionate 'pain and palliative care' teams.

 

Children's palliative care is a response to the suffering of a child and their family facing life-threatening conditions.  It's holistic, looking at the body, mind and spirit within the social and cultural context.  It cares for the child from the time of diagnosis until death, and after death it does bereavement support for the family.

 

Regrettably, not all conditions can be cured. However, many children with life-limiting conditions will live for years, if not decades. Currently, 20 Million children around the world can benefit from palliative care, but access to services remains an issue (ICPCN). Children are particularly at risk of inadequate pain management due to age related factors, limited access to essential medicines and misconceptions about how to effectively treat their pain.  These vulnerable children and families are suffering. They are largely invisible. But for those who are receiving care, the results are extraordinary.

 

These remarkable stories show young people finding hope, love, joy and attainment in the face of the inevitable.
Featuring Joan Marston, Dr Ednin Hamzah, Dr Sarah Friebert, Naledi Kopane, Dr Lee Ai Chong, Dr Joanne Wolfe, LeeAnne Curran, Dr Franca Benini.

 

ABOUT LITTLE STARS

 

Stories have been captured in 9 countries – the USA, South Africa, India, Australia, Malaysia, Italy, Jordan, the UK and Russia.

 

The series is presented by acclaimed British actor David Suchet CBE.

 

The series will compromise a one-hour feature film for television, with broadcast confirmed through Al Jazeera Documentary Channel.  Additional broadcasters will be announced shortly.  The project will also be broadly available through Pay TV, Video-On-Demand services including iTunes and NetFlix, DVD, iOS App and online.  Please sign up to the newsletter to stay tuned to project related news, including about television broadcast announcements.

WHY SHOULD CHILDREN SUFFER? – COMING SOON 3 DECEMBER 2014

“In all parts of the world, tragically, there are children who are going to have short lives and in many parts of the world those children are going to die in pain and with other distressing symptoms,” Sister Frances Dominica.

 

Regrettably, not all conditions can be cured. However, many children with life-limiting conditions will live for years, if not decades. Currently, 20 Million children around the world can benefit from palliative care, but access to services remains an issue (ICPCN).  Read more…

VALUE EVERY LIFE – COMING SOON 17 DECEMBER 2014

“Paediatric palliative care in its essence is a response to the suffering of a child and a family who are facing life-threatening or life-limiting conditions  It’s holistic, looking at the body, mind and spirit within the social and cultural context.  It cares for the child from the time of diagnosis until death, and after death it does bereavement support for the family ” Joan Marston.

 

This Accolade Award-winning short film introduces us to the paediatric (pediatric) palliative care and children’s hospice. It features Joan Marston (international Children’s Palliative Care Network) and the staff and children of Sunflower House in Bloemfontein, South Africa. Read more…

CHARLIE’S STORY – COMING SOON 7 JANUARY 2015

“The death of a child is considered the worst loss you can go through and I think that’s particularly true of the families I’ve worked with ” Natasha Samy, Social Worker & Bereavement Counsellor.

 

This short film tells the story of Charlie and his family from Sydney, Australia.

 

“Charlie has GM1 gangliosidosis and that is a storage disorder that effects nerves results in Charlie being physically impaired and also cognitively impaired,” Dr John Collins. Read more…

Launch of the Little Stars Project

Guest Blog from Joan Marston

 

It has been such a delight to meet up with friends and colleagues from all over the world, here in beautiful Roma but here not to spend all their time visiting the ancient and wonderful sites of this amazing city, but because they care about children with life-limiting conditions. It is a sobering thought that while we are excited to be together, to learn and to share our experiences, there are over 20 million children and families battling with the day to day challenges that such illnesses bring into their lives.

Read more…

Little Stars – Childhood Epilepsy – Joseph’s Story

We have just released Joseph’s Story as part of our Little Stars Indiegogo crowd funding campaign.

 

About Joseph’s Story by Fiona Stewart

 

“The most surprising thing I have learnt about paediatric palliative care is that it is not just about endings. Palliative care is really a steady arm to lean on: it supports you to make your time together the best it can be, and it helps families take some control back over their lives.

Read more…