Living with Cystic Fibrosis - LeeAnne's Story
"I was just told I have six months to two years to live. I don't feel that way right now, and I don't look that way." These words from 33-year old LeeAnne explain her personality and outlook better than any others.
LeeAnne is from Boston, USA and was diagnosed with Cystic Fibrosis when she was two years old, since then her condition has worsened to the point of being inevitably terminal, but nonetheless LeeAnne is determine to persevere.
Her struggle with Cystic Fibrosis has not been easy, however. Throughout her life, LeeAnne has been forced to deal with many issues ranging from her constant pain and additional problems caused by osteoporosis, to social stigma and emotional pain stemming from her condition.
Throughout all of this, LeeAnne has still found the strength to keep living the life that she wants to live, even going so far as to do things that her doctors told her she would never be able to do with an illness like Cystic Fibrosis, like having a child. Bailey, now 14, is her constant source of inspiration and motivation to push through.
This film explores the extraordinary life that LeeAnne has achieved against the odds, and looks at the ongoing support she has received from her pain and palliative care team, and especially from her family and friends.
Please consider giving to Pediatric Advanced Care Team (PACT) at Boston Children's Hospital. Contributions can be made at www.bostonchildrens.org/givenow - under Donation Designation enter PACT.
Or mail checks, payable to Boston Children's Hospital – add PACT in the memo field, to Boston Children's Hospital Trust, 401 Park Drive Suite 602, Boston, MA 02215-5301."
If you sign up to our newsletter we'll share important updates, new film releases and let you know about important outcomes in children's palliative care http://www.littlestars.tv/subscribe/ or join us on social media by clicking the links at the bottom of the page.
Dr Richard Goldstein
Curly the Pug
Little Stars: Japan Prize Finalist
Little Stars: Accomplishing the Extraordinary in the Face of Serious Illness has been bestowed an enormous honor by being named a Finalist in the 2015 Japan Prize.
The Japan Prize International Contest for Educational Media is the world’s most prestigious recognition in the educational media genre. Read more…
Little Stars Officially Selected for Breath Of Fresh Air Festival
The Tasmanian Breath of Fresh Air Festival has officially selected Little Stars: Accomplishing the Extraordinary in the Face of Serious Illness in its 2015 Festival line-up.
Little Stars tells the surprisingly life-affirming stories of young people living with life-limiting illnesses. Against the odds these youngsters are making the most of every moment thanks to the support of their loved ones, working in harmony with passionate ‘palliative care’ teams. Read more…
Sabine Kraft guest blog: Bundesverband Kinderhospiz
Guest blog from Sabine Kraft, Bundesverband Kindehospiz, Germany.
Es war ein eindrückliches, unvergessliches Erlebnis, Lucy und ihre Familie an dem Filmtag zu begleiten. Lucy ist ein Mädchen, eine junge Frau, die eine starke Persönlichkeit ist, ein Mädchen, das mein Herz im Sturm erobert hat, eine Heldin. Ich wünsche Dir so sehr, Lucy, dass Deine Kunst und Deine Geschichte überall bekannt wird. Du bist ein Star! Read more…