ROYAL PALLIATIVE CARE ADVOCACY - LINGES' STORY
"Just the sheer fact that someone as high profile as HRH Raja Zarith or HRH The Duchess of Cambridge are both serious and passionate about this movement automatically makes it a subject worth discussing." Gail Featherstone, Wife of the Former British High Commissioner to Malaysia.
"Paediatric Palliative Care is a very important aspect of care for the community, here we find that many people are not aware that children do get ill, they do get life threatening, life limiting diseases, they do suffer and they do need care." Dr Ednin Hamzah CEO/Medical Director Hospis Malaysia
The International Children's Palliative Care Network estimates that worldwide twenty million children can benefit from palliative care, but access to such services remains an issue.
To close this gap advocating for Paediatric Palliative Care is critically important. Hospis Malaysia arranged for the Duke and Duchess of Cambridge to meet the children in the care of Hospis Malaysia as part of their Royal visit in 2012. "William and I are hugely excited to be in Malaysia—this, our first-ever visit—and are absolutely delighted to have been invited to join you all here," Kate said as she stood at a podium at Hospis Malaysia. "It is so exciting to learn about the countries first ever paediatric palliative care program" said Kate Middleton, Duchess of Cambridge.
A young palliative care patient Linges' was one of the children who meet Prince William and felt very lucky to have this experience.
HRH Raja Zarith of Johor is an advocate of Palliative Care and was encouraged to come forward in speaking about the paeditric palliative care program. "I find it very fulfilling, its nice to see that you can make a difference" HRH Raja Zarith Sofiah Idris. The Malaysian State of Johor has benefited greatly from HRH involvement in advocating for the implementation of children's palliative care.
Dr Ednin Hamzah CEO/Medical Director Hospis Malaysia
Gail Featherstone Wife of the Former British High Commissioner to Malaysia
Linges' Palliative Care Recipient
Prince William and Kate Middleton- Duke and Duchess of Cambridge
Dato Dr Geok Lan Kuan- Senior Consultant Paeditrician, Malacca Hospital
HRH Raja Zarith Sofiah Idris
Please consider supporting the life-changing work of Hospis Malaysia at www.hospismalaysia.org
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Dreams are the stuff that hope is made of
Guest Blog by Ednin Hamzah, CEO/Medical Director Hospis Malaysia
Dreams are the stuff that hope is made of. And talking to the children that we are involved with gives us an insight into the dreams that they have. In listening to Linges as she relates her hopes and dreams, her eyes brightened as she perceives a better future despite her illness.
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Gail Featherstone is the wife of the former British High Commissioner to Malaysia His Excellency Simon Featherstone CMG. Gail authored the delightful children’s book ‘Mr Monty’s Treat’ with proceeds from the sale of the book divided between Hospis Malaysia and East Anglia Children’s Hospices in the UK.