Value Every Life
“Paediatric palliative care in its essence is a response to the suffering of a child and a family who are facing life-threatening or life-limiting conditions It’s holistic, looking at the body, mind and spirit within the social and cultural context. It cares for the child from the time of diagnosis until death, and after death it does bereavement support for the family ” Joan Marston.
This Accolade Award-winning short film introduces us to the paediatric (pediatric) palliative care and children’s hospice. It features Joan Marston (international Children’s Palliative Care Network) and the staff and children of Sunflower House in Bloemfontein, South Africa.
VALUE EVERY LIFE
Regrettably, not all conditions can be cured. However, many children with life-limiting conditions will live for years, if not decades. Currently, 20 Million children around the world can benefit from palliative care, but access to services remains an issue (ICPCN). Children are particularly at risk of inadequate pain management due to age related factors, limited access to essential medicines and misconceptions about how to effectively treat their pain. These vulnerable children and families are suffering. They are largely invisible. But for those who are receiving care, the results are extraordinary.
“All of us live in a death-defying society. None of us like to think about our own dying, even as we get older. And when we think of a death of a child it seems to go against the laws of nature. Every child’s life as value. It doesn’t matter whether that child lives for a day or until they live in their early thirties, every moment is precious and valuable. And palliative care actually values short lives,” Joan Marston.
Featuring Joan Marston.
Guest Blog by Katherine Irene Pettus, PhD
Read in French Blog de Noël
Read in Russian РОЖДЕСТВЕНСКИЙ БЛОГ
HOW PROVIDING PALLIATIVE CARE FOR CHILDREN WITH LIFE-LIMITING AND LIFE-THREATENING ILLNESS CALLS IN THE KINGDOM AND BENEFITS US ALL
When the heart breaks God can come in. “The wound is the place where the Light enters you,” Rumi.
The Christmas season calls Christians to reflect on what we call the Incarnation, or God taking human birth in a little child destined to suffer and die at the hands of those whose power he threatened. This blog reflects on how we, as community members, can serve the Incarnation in the persons of seriously ill children and their families, bringing gifts, like the Magi, of ourselves, our treasure. Read more…
INTERNATIONAL CHILDREN’S PALLIATIVE CARE NETWORK
To live in a world where children’s palliative care is acknowledged and respected as a unique service, and every child and young person with life-limiting or life-threatening conditions and their families can receive the best quality of life and care regardless of which country they live in. The International Children’s Palliative Care Network (ICPCN) shares a vision that the total need of life-threatened or life-limited children should be met to encompass physical, emotional, spiritual and developmental aspects of care.