Why should children suffer?

“In all parts of the world, tragically, there are children who are going to have short lives and in many parts of the world those children are going to die in pain and with other distressing symptoms,” Sister Frances Dominica.


Regrettably, not all conditions can be cured. However, many children with life-limiting conditions will live for years, if not decades. Currently, 20 Million children around the world can benefit from palliative care, but access to services remains an issue (ICPCN). 




Children are particularly at risk of inadequate pain management due to age related factors, limited access to essential medicines and misconceptions about how to effectively treat their pain.  These vulnerable children and families are suffering. They are largely invisible. But for those who are receiving care, the results are extraordinary.


Children’s palliative care is a response to the suffering of a child and their family facing life-threatening conditions.  It’s holistic, looking at the body, mind and spirit within the social and cultural context.  It cares for the child from the time of diagnosis until death, and after death it does bereavement support for the family.


These remarkable stories show young people finding hope, love, joy and attainment in the face of the inevitable.


“Governments all around the world should wake up and recognise the needs of these children,” Barbara Gelb.


Featuring Sister Frances Dominca, Brabara Gelb. Dr Rasha Al Hamad, Dr John Collins, Dr Stephen Liben, Dr Anna Gohcakova, Dr Lee Ai Chong, Joan Marston, Dr Pradnya Talawadelear, Dr Rut Kiman, Silvia Lefebrvre D’Ovidio.





Guest Blog by Sister Frances Dominica


The greatest tragedy any family can face is the death of a beloved child. It can and does happen in every part of the world, it always has and always will. The way in which society copes with such an event varies from culture to culture. Families have often felt alone in this tragedy, whether in the setting of a state of the art intensive care unit or on a pavement in a slum city. Read more…




Together for Short Lives is the leading UK charity for all children with life-threatening and life-limiting conditions and all those who support, love and care for them. We support families, professionals and services, including children’s hospices. Our work helps to ensure that children can get the best possible care, wherever and whenever they need it.


From the moment of diagnosis, for whatever life holds, we help to ensure that families make the most of their precious time together.

Read more…


Guest Blog by Barbara Gelb


I am writing this BLOG fresh (or not so fresh!)  from a TV appearance doing a virtual cycle ride from London to Lapland for a major Christmas charity appeal here in the UK.


The profile of children’s palliative care has never been higher, but there is still so much more to do to reach all of the UK’s 49,000 babies, children and young people with a life-limiting condition.

Read more…

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